Welcome to my channel

Welcome to my channel

September 15, 2019 0 By Ronny Jaskolski


Hi I’m Fearlessly Brave and I have Meniere’s
Disease!! Welcome to my channel!! so what is meniere’s disease?? Meniere’s Disease is a disorder of the inner
ear that causes 4 main symptoms. the first symptom is Episodic Vertigo. the second symptom is Fluctuating hearing
loss the third symptom is Pressure in ear/ fullness the fourth symptom is ringing in your ears So let’s talk more about these 4 symptoms the first symptom is Episodic vertigo— episodic
vertigo is when you get dizzy. Not just dizzy you feel like the room is spinning dizzy.
what I can equate it to is like you’ve just been on the tilt O whirl forever and basically,
what that is is that um amusement park ride when you go like this and you’re on the wall
a bit and you’re like here hanging on and it’s like going like this, I don’t know if
that makes any sense to anybody you can just Google it, google what a tilt O whirl is if
you don’t know what it is. You know how after you get off you still feel like you’re spinning?
because you were just spinning, literally? That’s basically how it feels. It’s pretty
disabling, you can’t really do anything but lay down and take medicine and pray that
it goes away. It’s not fun. It’s pretty debilitating. It affects every single person that has this
disease, it’s the worst part of disease in my opinion and other peoples opinions The second symptom is the Fluctuating hearing
loss with fluctuating hearing loss when you have an attack when you have vertigo and all
the other symptoms come together your hearing can be affected. Sometimes your hearing can
dip low after an attack which means it’ll go down and you won’t be able to hear as well
and other times it will go up and it’ll be normal or almost normal or whatever. Usually,
with Meniere’s Disease, you will lose all of your hearing in the affected ear. it is
a degenerative disease which means that you will like lose all of your hearing. Normally
it affects only one ear. but sometimes it’s bilateral which means it will it affects both
of your ears. And in that case, you can lose both sides of your hearing and become completely
deaf. unfortunately. the third symptom is Pressure changes/ fullness
in ears — what this means is that you have a feeling like your ears are full. The best
way I can describe that is like you’re going up a hill and know when you go up a hill you
have to pop your ears by yawning by chewing gum by swallowing. That’s basically that kind
of sensation. you get that whenever you have an attack sometimes a lot of these symptoms
just happen randomly. It’s like they come on pretty sudden. and the last symptom is Tinnitus. Tinnitus
is when you have ringing in your ears. Some people have a pure tone which is more like
a (whistle) like a whistle and other times people will have noise or static which is
more like a (shhhhh) sound. It’s happens all the time, there’s no really it never stops
basically. it normally is worse for people at night time. Especially me like i get it
worse at night.. I have a hearing aid so when i take that out i use that as a mask well
um one of the reasons why I have the hearing aid is to help mask the noise that’s coming
in through my ear by allowing other noise to come in and also for hearing so I can hear. Some people also get drop attacks, which is
when you lose balance because your so dizzy that you just fall and that’s not fun. I have
this before as well. so what causes Meniere’s Disease? According to the national institute of deafness
and other communication disorders which is a govt website. The symptoms of Ménière’s disease are
caused by the buildup of fluid in the compartments of the inner ear, called the labyrinth. The
labyrinth contains the organs of balance and the hearing. It has two sections: the bony
labyrinth and the membranous labyrinth. The membranous labyrinth is filled with a fluid
called endolymph that, in the balance organs, stimulates receptors as the body moves. The
receptors then send signals to the brain about the body’s position and movement. In the
cochlea which is the hearing organ, the fluid is compressed in response to sound vibrations,
which stimulates sensory cells that send signals to the brain. In Ménière’s disease, the endolymph buildup
in the labyrinth interferes with the normal balance and hearing signals between the inner
ear and the brain. This abnormality causes vertigo and other symptoms of Ménière’s
disease. so what helps? Medication, sometimes a muscle relaxant or
a anti-anxiety medicine helps, a lot of people take like steroid medicines. I take it’s called
Dramamine also known as meclizine. that normally helps me, you can get that over the counter.
It’s not prescribed, it’s basically just motion sickness medicine and it helps stop it. surgery which is worst-case scenario but you
can get gentamycin which is an antibiotic that they put in the eardrum and basically
what that does is it causes the balance mechanism on the side your affected with to break down
and there have been people who have had good results and some who have had bad results.
It really depends on the person. diet helps. low salt low caffiene mostly low
salt diet really helps because salt can cause the fluid to build up. also injections like steroid injections, some
people that helps them stress levels can really, cause stress can
affect it being on the lookout for weather changes because
for some people the barametric pressure changes outside can definetly affect them, hello. and Physical therapy, it’s called vestibular
therapy that also can help. some celebrities that have Meniere’s Disease the two that came to my mind were Katie Leclerc
who played Daphine on Switched at birth she has it
and so does Kristin Chenoweth whos a singer she does broadway and she also has it. If you think you have Meniere’s Disease
and have the symptoms above please go see your doctor, I would go see a specialist Called
an ENT ear nose throat doctor and they will properly diagnose you and will be able to
help you on your journey!! They might refer you to an Audiologist who might be able to
help with your hearing like I said hearing aids sometimes can help people and sometime
it doesn’t help people. It affects people differently and living with this disease is
not fun. I would like to talk some more about it with
you guys and educate people because it is an invisible disease because not a lot of
people know about it or understand it and I’d like to be able to help people understand
it. Because yes it is an invisible disease, it’s something that you can’t see from looking
at me. and people need to know about it. If you have meniere’s you’re not alone!!!
I am here for you! I understand you can message me anytime, I get it. So if you have any comments
or questions please comment down below. maybe if enough people send mequestions maybe I
can make a q & a. If you want me to talk about anything else about Meniere’s disease or how
it affects me please comment down below I’d like to know your input. Thank you for watching.
please subscribe and hit that notification bell so that you know when I post my next
video. Stay tuned and have a fabulously brave day! Bye!